A guide to registries and how you can use this information to inform discussions with your consultant.
What are registries?
Registries collect data about the health of patients and their outcomes over time following certain medical procedures. They are primarily used by clinicians and medical experts to improve the quality and safety of care that patients receive.
Registries will also typically publish how many times a consultant has performed different procedures and information related to their patients’ outcomes. Registries can also be used by patients when researching which consultant is best for them. If a consultant participates in a registry, it can be a good sign that they are fully engaging with their profession in improving patient care.
The National Joint Registry
Currently, the only registry information that PHIN provides is a link to the consultant data published by the National Joint Registry (NJR).
The NJR collects information on hip, knee, ankle, elbow and shoulder replacement surgery and monitors the performance of joint replacement implants, together with those of the consultants and hospitals providing the care. It is mandatory for hospitals to submit all joint replacement procedure details to the registry.
If you are searching for a consultant and select any one of the above procedures, you’ll be offered a link which will take you to the consultant's NJR profile.
All consultants that undertake these procedures are required to submit data on their relevant cases to the NJR in order for their outcomes to be monitored and analysed. If a consultant doesn’t have a link to an NJR profile, you might want to ask them to clarify why.
The NJR has been collecting data since 2003 and now holds over 3.2 million records from NHS and private hospitals in England, Wales, Northern Ireland, the Isle of Man and the States of Guernsey.